Join our World FSHD Day Celebration

Please RSVP Below. Submit the form and you will receive a confirmation email.


WHAT: British Columbia Chapter - World FSHD Day Celebration Event!

DATE/TIME: Thursday, June 20th, 2024 - 5:30pm PT

WHERE: Rogue Kitchen & Wetbar Gastown, Uber Lounge, 601 W Cordova Street, Vancouver, BC V6B 1G1
The restaurant is accessible, with private washrooms, and conveniently located at Waterfront Station, the hub of Vancouver’s SkyTrain, buses, and Seabus. Parking is available at nearby lots.

WHY: It’s June 20th is the International Day of Awareness for FSHD! We deserve a day to celebrate. 


Event Highlights:

  • Special Guest Speaker & Sponsor: Dr. Eva Chin, Executive Director at SOLVE FSHD, will provide exciting updates on the groundbreaking work happening right here in Vancouver.
  • Community Updates: Hear from our local British Columbia Chapter directors and meet representatives from FSHD Canada.
  • Beautiful Venue: Enjoy the stunning views of downtown Vancouver and the ocean at Rogue Kitchen & Wetbar Gastown’s Uber Lounge.

Feel free to invite family and friends interested in FSHD research and therapy developments! Last year’s event was a tremendous success, so we’ve moved to a larger, even more amazing venue to accommodate everyone.

Please be sure to RSVP BELOW - and let us know how many friends and family will be joining you so we can plan accordingly.


~ Priscilla Sharun & Cheryl Hooge, BC Chapter Co-Directors.

© 2023 FSHD Society