RSVP for the Meeting
 

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MEETING: British Columbia Chapter - Virtual Meeting

DATE: Thursday, December 7th, 2023

TIME: 6:00pm PT

WHERE: Virtually, via ZOOM

DETAILS: With the Holidays quickly approaching, we hope you can join us for our final meeting of 2023!

We are excited to share with you:

- Presentation from Neil Camarta, Founder and President of the FSHD Canada Foundation. He will provide us an update on what is happening with projects underway to speed access to FSHD therapies for Canadians, as well as some innovative approaches to combat FSHD; 

- Update from your BC Chapter Directors, including results from our first BC Walk & Roll to Cure FSHD; 

- Community discussion about 'hacks' that people do that makes a positive impact on their lives with FSHD; 

- Brainstorming possible meeting topics for 2024.

Note: As a request from many members and meeting participants, the meeting will not be recorded and shared - so we do hope you can make it. If you are unable but would like the information, we can share highlight points about what was discussed. 

We hope to 'see' you there!

~ Priscilla Sharun & Cheryl Hooge, BC Chapter Co-Directors.

© 2023 FSHD Society