Welcome to BetterLife FSHD
BetterLife will help you manage your health while contributing to groundbreaking research! Sign up now to be notified as soon as BetterLife is live and for a chance to join the pilot group.
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State * Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District Of Columbia Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Puerto Rico Rhode Island South Carolina South Dakota Tennessee Texas United States Minor Outlying Islands US Virgin Islands Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming
Gender * Male Female Nonbinary I prefer not to disclose
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Indicate your relationship to FSHD * I have FSHD I am a parent of one or more children with FSHD I have FSHD and am the parent of one or more children with FSHD
Length of time since your diagnosis: * Less than 1 year 1-2 years 2-5 years 5-10 years 10 or more years
Length of time since your child’s diagnosis (or eldest child’s diagnosis, if more than one): * Less than 1 year 1-2 years 2-5 years 5-10 years 10 or more years
How old is your child/children? *
We are looking for volunteers to test out BetterLife FSHD before the public launch. There are a limited number of spots in the pilot group, and being in this group would involve a time commitment of about three to four hours over the course of two weeks. Yes! I’m interested in joining the pilot group.
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